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Planning For and Coping With
Wandering Behavior:
Part Two

In Part One of Wandering Behavior we discussed who might be affected by the compulsion to wander from home and risk getting lost. In this section we present ways to anticipate the need to wander and simple steps that can sometimes help reduce the wandering urge.

People in the middle stages of dementia are generally no longer able to manage their impulses well. They may not be able to tell us why they feel the need to move around or to go outside. We must rely on observation and understanding their individual "patterns" in order to better predict when they may have these impulses. If we can predict the impulse to "roam," we can often head it off.
 

Experts have identified seven primary "triggers" for wandering behavior:

1. Medication Side Effects: Some medications can cause increased anxiety, physical discomfort such as nausea, flushing, dizziness or lightheadedness, even hallucinations. An individual who is experiencing unpleasant side effects may be walking restlessly and trying to escape something that can't be articulated. A caregiver who notices changes in behavior that can be related to having started a new medication, or the time of day that a particular medication is taken, should immediately contact the prescribing physician. Reviewing all medications and making adjustments may help to resolve the problem.

2. Stressful Environment: At times when the environment is more noisy or active a person with dementia can become overwhelmed. At the end of the day when family members are returning home, the evening meal is being prepared, the television is on and the phone is ringing, the need to escape the hustle and bustle can be a cause of wandering attempts. Providing a place where the patient can have restful quiet can be beneficial in reducing this stress.

3. Needing The Toilet: A person who can no longer connect an uncomfortable feeling with the need to use the toilet, or who can't find or properly use the toilet, will often want to escape the uncomfortable feeling by leaving the scene. Be sure to leave bathroom doors open so that the patient can see the facilities inside the room. Use a night light or leave the light on in the evening and on gloomy days. If this is not sufficient, assist the patient to the bathroom on a regular schedule, whether he indicates that he needs to go or not.

4. Boredom: Like all people, those with dementia need something interesting to do. Boredom will lead them to explore and wander into places that can be dangerous. Meaningful activities at which they can succeed will reduce the need to go looking for something to do.

5. Historically Active Individual: A person who has had a life pattern of always being active and on the go will not change simply because of a dementing illness. Sitting in a chair is not their "style." These individuals need lots of activity options and a safe area where they can roam, such as a well-fenced and gated yard. These patients will especially benefit from an excellent adult day program with lots of activities.

6. Feeling Lost: Even the home of a lifetime can be a strange place to someone with dementia. When they want to leave these patients are usually looking for something familiar. These are often the most difficult wanderers to divert, particularly in the evening when "sundowning" symptoms can worsen. Offering a snack "before you go," or a familiar and comforting object to hold can sometimes help. Sometimes a short walk or ride around the block is sufficient. Be wary of offering a walk to someone who will be difficult to bring back into the house. Often entering and leaving through the garage and taking a short car ride is safer.

7. Environmental Cues: Some dementia patients seem to be "cued" to want to leave when certain objects remind them that this could be an option. Coats and hats hanging near the door can invite going outside. Sometimes simply the sight of the door itself is enough. Keep outdoor gear in closets or rooms far away from outer doors. Many women will not leave without their purse. Keep purses out of sight if possible. Disguise the door by painting it the same color as the wall or by hanging a mural over it. Use alarms if necessary.

The above suggestions are offered as a guide to observing your own loved one with dementia who may wander. Keep notes about the behavior you observe. Try to identify triggers to restless or anxious behavior. These are the potential triggers for wandering, as well. Look for activities, diversions and rewards that work. Write these down in your notes so you don't forget what worked in the past. Have one or two of these ready to grab quickly, if necessary (Hint: A well-wrapped dish of ice cream in the freezer and ready to go can often be a lifesaver when you need a quick diversion).

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