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Planning For and Coping With
Wandering Behavior

Studies suggest that at least 60% of all individuals with a dementing illness such Alzheimer's disease will eventually wander. Even people who have never been inclined to be adventurous, or who really don't like being outside, are at risk for wandering as the illness progresses.

On the other side of the coin, many people who are caring for someone with dementia will deny that wandering could ever be a problem for their loved one. As they look to past behavior, they will be certain that, because their loved one has never before become disoriented and lost, it cannot happen in their case. These are the caregivers who should make a point of keeping an unwashed shirt and pair of socks on hand, because they may one day be needed for search and rescue dogs.

If 60% of dementia patients eventually wander, this does mean that 40% will not. Any one particular patient may be in the non-wandering 40%. Unfortunately, just as with the lottery, unless the individual is unable to move around independently it's impossible to know for sure until all the numbers have been played. Caregivers who would rather not play this kind of roulette, where the odds are not in their favor, can choose to be prepared for wandering behavior.

Those who wander generally fall into one of two basic groups. The first group is those individuals who become disoriented or lost while doing an accustomed activity outside the home. The gentleman in the early stages of dementia who routinely walks out to retrieve the mail and one day does not recognize "home" when he turns around belongs in this group. He may wander for blocks, even miles, trying to find his way home.

It is impossible to predict if and when an episode of this kind will occur. Caregivers should always be alert to "good" and "worse" days. On "worse" days, keep a watch out the window or go along. Just in case, be sure that the patient always carries identification that can't be lost or left behind, even for a trip to the mailbox. A first initial, last name and telephone number written in indelible ink on the inside of all shirts is a good start. An identification bracelet is excellent if the patient will wear one. Women will often be willing to wear an ID necklace. Those who have served in the military will sometimes be proud to wear dog tags on the traditional bead chain.

The second group is those in the middle stages who require more assistance, and who are no longer going out unaccompanied. These dementia patients may, without warning, one day attempt to march out the door.

Anyone caring for someone who cannot safely go out alone should routinely keep all entry doors locked. Of course, locking the door will not be sufficient to keep a determined wanderer from opening it. The first episode of working at the lock will certainly give a caregiver notice that a new and dangerous behavior is beginning. That first time it might also give a caregiver time to get to the door before it's successfully opened.

Once an individual with dementia has tried to leave once, the odds are overwhelming that he or she will do so again. Putting alarms on the door and adding additional slide locks at the top or bottom of doors where they are less obvious will work for some. Others are amazingly adept at finding and working out new lock combinations. For these patients deadbolts and a floor pad with a built-in alarm which they cannot walk around may be a deterrent.

For many dementia patients who develop the urge to roam, the only deterrent is a "sharp" caregiver who learns what behavioral signs to watch for and how to divert the need to wander before it is out of control.

For help identifying "triggers" and practical suggestions for managing wandering behavior read Planning For and Coping With Wandering Behavior: Part Two
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