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Departments |
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End
Of Life Swallowing Decision
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About getting Lewy Bodies
patients to swallow. I
kinda' got to a breaking point last week. I tried to
get my 77 year old mom to eat ANYTHING last Thursday
and Friday, and she would let me put the food in her
mouth, but she wouldn't chew nor swallow. Not liquids, not soft foods, nothing. Consequently, she
pretty much dehydrated last week. Today, however, she
drank soup, ate a bowl of applesauce, ate 3/4 of a
NutraGrain bar, and has drunk 2 16oz cups of liquids,
so far.
I know that the non-swallowing thing will rear it's
ugly head, and I am actually wondering if there is
such a thing as a liquid protein that I can try to get
her to drink. She will not drink Boost, or Ensure,
even though I have made them super cold, hoping that
she will drink them as a shake - no way - "Thank you
very much.".
I have been taking care of her for 18 months now, and
I have only had this problem for about the past 3-4
months, that she won't swallow. I have gently
massaged her throat, with her head tilted back, to
help her to swallow, and I have sat in front of her
and made a chewing motion, to remind her to chew, and
she will for a while, but then forgets what she is
doing, and stops again.
Do you have any recommendations for this type of
problem? Have you heard of this happening to others?
She has had 3-4 strokes, one heart attack, and a
massive subdural hematoma, for which they had to
operate, rather than just drill holes in her skull to
relieve the pressure, so she has really had a time of
it, you know?
Thank you for any insight you might give me.

Most every person with a
progressive dementing illness such as Lewy Body Disease or
Alzheimer's type dementia (among many) will eventually
"forget" how to swallow. The forgetting will not be
consistent - one day it will be a problem, the next day
could be better. Eventually the ability to voluntarily
swallow will disappear. Since the liquid proteins all have
to be swallowed, I'm not sure that will solve her problem.
Unless you are professionally trained I would beware of
doing anything physically to force her to swallow. If food
goes down the "wrong tube" she can easily get food into her
lungs, which will create a host of even worse problems.
Eventually, possibly soon, you will be faced with the
decision about whether to have a feeding tube inserted. A
feeding tube bypasses the need to swallow, delivering food
and water directly into the stomach. This reduces the
concern about choking, but it raises a host of other
difficult quality of life issues. Each loving family must
make this decision according to what they know about their
parent's end-of-life wishes, and what they believe to be in
their parent's best interest. I strongly recommend that you
meet with her doctor to get his recommendations as soon as
possible. You might also want to meet with your spiritual
advisor or anyone else you might trust to help you make this
difficult decision.
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