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In Denial About Dementia

I have a friend whose mother is suffering with dementia and refuses to receive help for it because she is in denial. She lives in Evansville, IN with her husband and the son/daughter live in GA. Are there any support groups or drs that you may be aware of in that area that can possibly help them?  Please Help.  Thank you.

It's a fact of the disease(s) that many people with dementia are in denial because they have lost the insight and the memory to analyze and comprehend. Those who do sense that something is wrong are often frightened to have their concerns confirmed. So, it's often up to the family to seek out information and medical help.

I would start with the family physician if there's a good relationship there. If it hasn't already been done, the doctor can recommend a specialist to determine what's causing the dementia. You can't treat without knowing what you're treating. If the family doctor doesn't have a recommendation, or is reluctant to refer to a specialist, I would call the closest university hospital and ask for a referral to a neurologist who specializes in dementia.

In any state, the Alzheimer's Association is a great place to start for education and support groups. They offer help for all dementia, not just Alzheimer's.

One of the hardest things to learn, and one of the most important, is that with the dementias it's usually up to the family to adjust their expectations. We learn to use believable explanations and to "go where the dementia
sufferer is." We learn to ask the patient to ride along with us to "our" doctor appointment. We learn to identify medications as "for your blood," - or whatever works. And we learn to avoid arguing with "false" beliefs unless they are leading to obvious and immediate danger. They may be false to us, but not for the person who has the beliefs.

If they haven't yet, it's probably time for the Georgia family to pay a visit and have a planning-ahead talk with Dad. He will be the primary caregiver and decision-maker as long as he is able. The realities to prepare for are the progressive nature of all dementia, and the reluctance of most caregivers to accept help.

 

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