ElderCareTeam.com
Home | Text Size | Search | Member Area
 DEPARTMENTS
 Alzheimers Disease
 Assessment Tools
 Assisted Living
 At Home Care
 Caregiver Support
 CareTips
 Continuing Care
 Day Care
 Death & Funerals
 Dementia
 Diseases/Conditions
 Doctors
 Driving
 Drugs & Medications
 Equipment
 Families
 Featured Articles
 Featured Resources
 Financial Facts
 Hospitals
 Insurance
 Legal Issues
 Medicaid
 Medicare
 Moving & Relocation
 Nursing Homes
 Odds & Ends
 Safety
 Social Security
 Symptoms
 Tools, Logs & Forms
 Veterans' Benefits
 Search

 RESOURCES
 Help
 Other Sites We Like
 Senior Corner Store
 Text Size
Subscribe to our RSS Feed
 About this Site
 About This Site
 Contact Us
 Privacy Policy
home | Caregiver Support | Three Keys to Sane Caregiving
 

Three Keys to Sane Caregiving

Printer-Friendly Format

We recently participated in a seminar for experienced caregivers who talked for more than two hours about what worked and what didn't. After condensing our voluminous notes we distilled their experiences into three core "keys to sane and successful caregiving" that go like this:

  

Start the way you plan to continue:

As Andrea, caregiver to her mother for six years put it, "When I first started helping my mother out I bent over backwards to do everything when and how she wanted it. Of course, that meant that I was the 'chosen one' to do everything. When I finally figured out that I needed more help, Mother did everything in her power to make sure that nothing else but 'me' would work. She refused to cooperate with everything and everyone. One day I just lost it. We were driving home from another time-sucking errand and on impulse I drove into a nursing home lot. I got her wheelchair out of the trunk and told her to get in. She got big-eyed and asked 'why?' I looked her in the eye and said, 'Since you won't accept any help at home, you'll have to move. This looks like a good place to start.'

"We didn't go inside, but that was the day she started cooperating a little more. It's still not great, and she relapses a lot, but she's better."

When Jacquie told us her hospital discharge story, everyone sat in awed silence. Dad was hospitalized with a long list of illnesses, the worst of which would make it impossible for him to ever live alone again. After some weeks of non-productive rehabilitation the nursing home informed Jacquie that she would have to take him home. Not knowing any better, Jacquie did so. Three times a day Jacquie drove 30 minutes each way to visit her Dad, give him his medication and clean him up. Within a month he was again hospitalized, and this time the hospital discharge planner did the same thing. Home went Dad to his lonely house, with a little home health help and Jacquie.

Jacquie said, "I'm one of those people who doesn't like confrontation. When they said I had to do this, I just assumed they were right. When it happened again for the third time, I couldn't help myself and I just burst into tears right there in the emergency room. That's when I found out that there is help for someone like me. You just can't let someone who can't make good decisions be in charge. That was the hardest thing for me. He's my father, but I can't keep on being the 'good girl.' He's really, really mad at me right now, but he's in a nursing home and his legs are finally getting a little bit better."

Whether it be who cleans the floor and does the washing or the bigger things such as whether a parent should live with you, start as you hope to finish. If you know that you can't provide what's needed, insist on support services or a workable alternative. If you know that living with a parent would be short-term at best, avoid moving in together.

Undoing will be much more difficult than doing. If your parent is incapable and you know you can't be available long-term, get help from day one. If your parent is fully capable of doing something, even if slowly, don't take over. The more you do, the more dependent your parent will become. Keep your focus on maintaining your parent's independence as long as possible.

A routine is your best friend:

"It took us a few months, but we do most things at the same time every day now." said Lauren. "That make it easier for my mother-in-law, who lives with us, and for me. I get the kids up and out to school before she comes in for breakfast. We try to always schedule routine doctor visits on the same day of the week. I keep a list and only shop once a week - if we run out of something in between it's mostly 'too bad' for everyone. She takes a nap or a rest every afternoon (my time!). I even schedule laundry day now...hers on one day, ours on another.

"I learned to do this while she was still living alone. My life was chaos of running back and forth until I gave her a calendar with my 'Mom time' clearly laid out. It took a while of saying, 'I can't today, but I have time tomorrow' before she finally got the idea that she would have to wait until I had the time to do what she needed.

"Of course, those little emergencies can mess up your plans, but you do eventually learn what's a real emergency and what isn't (mostly)."

For a parent with even the mildest dementia, a daily routine is especially important. An established routine "sticks" and is usually quite comforting to someone who is easily confused. That's why the best residential facilities for people with dementia will have a routine that never varies from day to day.

Keep a record and write it down:

Almost everyone agreed that our memories are fickle, indeed, and that a written record will be a life- and sanity-saver. Whether you choose a pretty journal or your kids' leftover spiral notebooks from last year, use whatever works. Just jot a little note at the end of every day and you'll have a good record to refer back to. It's surprising how even things that were monumental at the time can blur in your memory when you're busy. Just make a quick note about things that work, things that didn't work, and especially quick notes about symptoms and behavior. It will come in very handy the next time a medical professional has questions. It will also keep you from second-guessing yourself or minimizing how significant something really was when you look back.

When we did our best to sum up the gist of everyone's comments, it seemed to come down to basic organization and planning. As one woman with four grown children put it, "I had to have a system for managing the kids, and now that they're up and out, I have to be even more organized to take care of just one elderly person. With the kids, they would take the one time I slipped and they would try to make it a habit. My mother is the same way, so I have to watch that I don't give in just because it might be easier that particular day. Blow the routine just one time and the system it took you six months to get working, will take you another six months to get working again."





·  Caregiving All By Yourself: The Only Child Caring For Aging Parents
·  Need to De-Stress? Play With Blocks and Hit the Pause Button
·  Senior Risk Versus Senior Independence: Why We Shouldn't Help Too Much
·  When Elderly Parents Sabotage Caregivers