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Independence vs Control: A Caregiver's Dance

"Come on Dad, put your shoes on, we're going to be late!" The busy business

woman/daughter/caregiver exhorted her father as I eavesdropped from a distance.

The father glanced at her slyly from the corner of his eye as he continued to

fumble with his shoe. Exasperated, she bent down and swiftly tied the shoe. "OK,

Dad, pick your feet up, let's go!" Dad kept his feet firmly planted on the floor

in front of his wheelchair.

Noticing that I was watching, the daughter looked at me and stated

emphatically, "It's a control issue."

"Yup," I thought. "It's a control issue, all right. But who's controlling

who?"
 

Independence and Control in Caregiving

As caregivers, we often get caught up in what we think are the urgent needs

of the moment, and we lose sight of the fact that there are two people dancing

this caregiving waltz. One may be more "able" than the other, but both have the

very basic need to stay in control and independent. Where problems arise is when

my need to be in control as a caregiver gets in the way of my care recipient's

need to keep whatever control he or she might have left.

As humans, we are hard-wired to seek independence...or "autonomy," as the

psychologists like to call it. The toddler resists being put down for a nap. The

six-year-old shouts, "You're not the boss of me!!!" The adolescent counts the

days to "freedom." Each important independence milestone is hard-won.

Small wonder, then, that the octogenarian is not likely to relish losing a

lifetime of independence. Couple that need for independence with the obvious

fact that our care recipients are not completely independent any more, and you

have a recipe for resistance.

Now throw in the fact that we caregivers are often overwhelmed and strapped

for time. We're sometimes an impatient lot. The recipe for resistance just

doubled.

As caregivers, the most important thing for us to understand in this dance is

we're the ones who are going to have to make adjustments. And the biggest and

most difficult adjustment we're going to have to make is to SLOW DOWN. We'll get

there faster if we do.

Our older loved ones simply cannot move as quickly as we do. They may need a

few minutes to digest what we're asking them to do. If they have physical

issues, they then have to muster the energy to move. It may take a few minutes

to locate the sweater, or comb the hair. If the issue is dementia, it may be

difficult for our loved one to remember what we just asked them to do. Whatever

the reason, it takes longer to get things done when you're elderly and not in

the best of health.

Think about your own reaction when someone tries to rush you. Assuming the

house isn't on fire, I know that my immediate reaction will be to get irritated

and drag my feet. I don't like being "bossed around," and the old three-year-old

in me resurfaces. I'll skip the tantrum (most times), but I'll try to take back

control by going into slow motion. Usually I can recognize what I'm doing and

make a conscious decision whether I want to give in, or whether I want to push

back. Sometimes it just "happens," and that's when things can escalate.

Our care recipients often lack insight. They will react to the tension in our

voices, and the attitude of our bodies, even when they don't grasp why they are

reacting. It's our job as caregivers to learn what the triggers are for

resistance and to plan accordingly.

Expect that everything you do with your older loved one will take longer than

it "should." If it should take five minutes to get ready and out the door, plan

on a minimum of 20 minutes. If there isn't enough time for a slow march up to,

into, and back out of the shower, then skip the shower and use no-rinse body

wipes instead.

Try dancing a slow waltz instead of a jitterbug for a few weeks and see if

your elder doesn't seem to be less agitated and contrary. The Horse Whisperer

always made faster headway with the rebellious horse than the cowboy who tried

to break the horse into submission.

...Not that your elder is a horse, but you get my drift.

 



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